Monday, April 2, 2018

Living Well with Parkinson's!




What has your journey been like since your diagnosis?

I was diagnosed with Parkinson’s in early 2008 and all along the way I’ve been blessed with a very supportive family, employment, church, medical and therapy professionals, friends and strangers. I have been very open about having Parkinson’s and have found that being positive and active rather than reclusive and depressed has helped me deal with the challenges that Parkinson’s brings.
I have become involved in different ways with various organizations within the Parkinson’s community to focus on advocacy, events, awareness and living well. Doing so has made it a lot easier for me.

Carl Ames Moments of VictoryHow do you live well each day?

I strive to have a positive attitude and not to let the challenges get me down. I like to interact with people and help others. I exercise and work on hobbies.

What do you wish you would have known when you were diagnosed that you know now about living with Parkinson’s?

That the sooner you get involved in Parkinson’s communities and seek out opportunities to meet others, the more positive the experience will be.


What do you wish everyone living with Parkinson’s knew about living well?

I wish everyone knew that it can be done. You can live well with Parkinson’s each and every day.
It’s not a death sentence to be told you have Parkinson’s because there are actions you can take to improve all areas of your life. Having a positive attitude, exercising regularly, developing relationships with others, eating well and tailoring your medications to give you the best results possible are all things you can control, and together they have the power to dramatically improve your quality of life while living with Parkinson’s.
Carl Ames is part of our cohort of Davis Phinney Foundation Ambassadors. Our Ambassadors are volunteers who share resources and information throughout their local and regional communities to help people take action and improve their quality of life with Parkinson’s. Connect with one of our Ambassadors and begin your journey today of living well with Parkinson’s!

Saturday, December 16, 2017

Catch up time!

Well it's been quite awhile since I posted. I guess it's time to get back at it and stop slacking.

A significant event since my last post was having back surgery in December 2016. I had been having pain in my right leg for quite sometime. It was determined that I was having some disc degeneration at the L4/L5 section of my spine. Dr. Ponce, the same neuro surgeon who did my DBS surgery performed a fusion surgery. I was in the rehab center for Christmas and came home on the 29th of December. The whole experience was quite an ordeal to say the least. Having Parkinsons combined with back surgery was not fun. I could write a long report on the whole experience but I won't at this time. A year has passed since then and I am finally feeling like I am feeling relief from the pain. Thank goodness!

Wednesday, August 31, 2016

Davis Phinney Ambassador Video

I have been representing the Davis Phinney Foundation this year as one of their ambassadors and was recently featured in this video

Saturday, August 27, 2016

Anthem Sprint Triathlon

Finish Time
Overall :166 / 170
Gender :107 / 109
Categ :14 / 14